Update on the leg condition

Dear All,

Finally we have solved my leg pain mystery. It has been diagnosed as Osteomyelitis, which is just infection of the bone. My right femur seems to have this problem and there are two clear area where abscess is seen. This has to be surgically drained. So this would be done during the next week before the Chemo is started. This would provide more time for our Bone Marrow search and subsequent extraction and follow up. This means we have more time to progress in these aspects.

I am a bit worried of the surgical procedure hopefully it should be only a minor one, however happy that I would get rid of my wretched leg pain after that. So please pray that I tide over these easily and move on with my original treatment as soon as possible.

Thanks and regards
Rajesh

Update from Rajesh

I finally completed my second MRI and Bone Scan(Nuclear Medicine)today for my leg problem. Doctors seem to be arriving at some answers about it, which make me feel happy.

In all likelihood my Chemo may start from next week after we have sorted out the problem with my leg. This is just a short update and by Monday I will have a longer and more detailed update.

Regards

Rajesh

Update from Rajesh

Dear All,

Here I am, back in the hospital in the new block of buildings, it does look different, I am in room 709 on the A7 ward and my direct number to contact would be +91-416-2283938. For a second, once inside the room you are not sure which place you are in, the room is spacious and definitely is high tech, a lot of thought has gone into making the way it is. It is really great ! I shall try and send you all snap of this as soon as possible.

The only problem. My leg pain which seems to persist. Tomorrow I may have to go through a MRI scan for further investigation of this problem. A bone marrow may be done tomorrow to reassess my condition. Today my counts look very interesting and resembles the sensex index, my platelets have hit the all time high of 350K plus which I have not had in the last year, my WBC is 7400 and HB 8.4.

The donor matches are going on as planned. Some correspondences happening between the hospitals and the respective centers. Hopefully we would be in a better position to know the progress of this in the coming week. Possibilities of the matches from US, AUS and may be even Singapore. All options are still open.

Otherwise all of us (Dad, Padma, Kids and my in laws) doing fine and back to the respective positions for the next combat. All of us were down with a small Viral infections which started of with Varun and finally ended up with Padma’s mom. These are the side battles we had during this break.

Regards
Rajesh

P.S: Visited with Dr. Ramesh’s (refer to comments in the blog) wife. He was not there as he comes only for weekends so shall meet him later.

Update

Please note that Rajesh will be back in Vellore on the 19th, instead of the 16th. There is a likelyhood of him moving into a new block at the hospital. So stay tuned for updates on his contact information.

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Update from Rajesh!

It was great to see you all in person, when you have friends like you all I don’t need a new year date to celebrate, anyway thanks for all the great support you all have been providing to me and my family, definitely I shall fight my best and expect to come out of it victorious.

I have finished my 1st round of the battle and my health has reached almost normalcy. My counts have all come up unaided ( that is without the growth factor injections) which shows that my bone marrow is doing well as of now. My HB is about 8.7, WBC is 4700 and Platelets are 38K ( may be considered a bit low) but for patients like me it is ok.

This means that I have earned a break from this round. So in all likelihood I would be discharged from the hospital today and would proceed to Palakkad to Padma’s dad’s residence for a 10 day break just to recuperate my body and come prepared for the next round. That is a relief and a good sign. I can get some time with the kids whom I get to see every day but can’t hug or huddle until I am out of here. So I am looking forward to this break in earnest.

As regards to near future programs, my High resolution HLA of mapping my Blood samples have been sent to AIIMS Delhi by CMC Vellore and they would be getting the report which would then be forwarded to NMDP for the HI RES Mapping with the current list of matches ( Obviously would include the donors from you drives).

From the Doctors here, these process may take a couple of weeks so may be close a month too, that does not permit me to take a large break because I am in remission now and I have to make sure that my disease is also well under control. That is why I would be back here on 16th and based on my Bone Marrow test on my return, I may have to go through another set of Chemo and be ready to receive the Donors Marrow.

If all goes as planned then, in all likelihood I would have this transplant done soon and then like my 1st battle await for my recovery back to normalcy. The tricky part here is that some times the reactions of the new donor’s marrow and my existing marrow would be a bit complicated. Anyway we shall hope for the best and assume these would be minimal for me.

regards

Rajesh